Carys had her weekly blood tests on tuesday, and she's neutropenic, which means that the white blood cells called neutrophils that fight bacterial infections, is very low. She has a bit of a runny nose, but otherwise is fine. We went to the Botanical Gardens yesterday for a picnic with Julie and her little boy Riley. Carys kept wriggling and screaming to get down and crawl around on the grass, and although I was a bit apprehensive, we let her get down and close to nature. It's hard to know what's the right thing to do, but I figure we can't keep her totally sterile! Her happy face and "ayyaa yaaa's" as she crawled around with the grass between her fingers, assured us that indeed, it was the right thing to do!
Carys Parkinson, diagnosed with neuroblastoma in Feb 2010 at 12 months old at Queen Mary Hospital Hong Kong. Moved to Melbourne to seek treatment at the Royal Children's Hospital. Confirmed to have stage 3 neuroblastoma, favourable histology, (non- N-MYC). At initial diagnosis, the tumour was non-resectable. 4 cycles of chemotherapy shrunk the tumour to 1/3 of its original size. Surgery to de-bulk the tumour was successful with 90% removed. Now on regular monitoring of remaining tumour.
Thursday, March 25, 2010
Rainbow man
It was rainbow day at Tane's kinder today. So he dressed up in as many colours as possible, and wanted to take Carys's new hello kitty stuffed toy that Jum and Yume sent for her. To say that he's loving kinder here would be an understatement. He gets so excited about going, that he practically runs down the road dragging me along, and when he sees his friends going in the gates, he shouts at the top of his voice "HI CLASSMATES!!!! HIIIII!!!!!" His teacher Sue is thrilled to have him, and says he's doing really well- participating, making friends, exploring different activities...... I'm so glad that he's fitted in and adjusted so well, and just so happy here.
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