Tuesday, September 14, 2010

All stable

We saw Lisa at the hospital today and had a good chat with her about the 2nd MRI results. She pulled up the images from the July scan and the one we had last week to show us what’s been happening inside Carys. In the past 2 months, it seems like not much has been going on at all!! So far, the remaining tumour looks quite stable, which is good news. The tumour is clearly visible on the images, running along the side of the spine, but there was hardly any difference in size and shape. Mum and Chris came along with us, so we were all very relieved when we saw that there was no change. Lisa seemed quite happy with the results too. In addition to the scans, the urine tests also showed stable levels of HVA – one of the hormones secreted by the tumour. Although the level is slightly above normal, it’s not increasing, which is good. Lisa believes that the tumour has had its big growth spurt, and now will remain stable. Though of course there are no guarantees. We continue with the waiting game, but at least we can breathe a little easier knowing that it’s not growing. Carys will be on 3-monthly MRI scans for at least the next year to keep an eye on things. If all stays stable, the MRI frequency will gradually decrease.

6 comments:

  1. I love the photo of Tane & Carys. It's all sounding really positive Don, great to hear all is going well. Lots of Love,
    Anitax

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  2. Hi Donna, Thank you for sending me the link to this blog. Stable is good, not as good as remission would be! Rafael has been stable for 18 months now :-)) xxx Tash

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  3. Hey Donna, Carys has grown so much since I last saw her. How I'd love her to hold hands and walk with Shayne. So cute the little hands...
    I'm glad too that Carys is stable. I hope for a miracle where her tumour just disappears on her own. You are a brave soldier. I learn from Nicole (whose daugher Maddie was born in August and is still in the hospital) how frustrating it can be to deal with hospital procedures, but she wishes she had given birth in Australia, and not in HK. Cary's doctors seem great and very capable at what they do. Keep it up!
    Lots of love, Jingyu

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  4. Hi Donna!
    I need to contact you ASAp about a nice surprise on this Friday. I havent got any of your new details so please get in touch as soon as you can. My mobile and email is still tthe same.
    We have been laughing and crying with you all and so beautiful to see Carys and Tane in the photo. Thanks for posting.
    Thinking of you all and much love,
    Jodie Phillip, Lucy and Daisy xxx

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  5. Hi Donna,
    I finally made a google account so I can follow properly! Good to hear the tumour seems stable, Kathy and I are praying that it stays that way! You guys are really doing an amazing job already, keep it up! And wow, we really love the photo. Carys and Tane are so cute!
    Love Kathy & Dave.

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  6. hi Donna

    your kids are so beautiful - i love the photo you've posted up of them holding hands.

    thanks for sharing carys' journey with us, bet you didn't even know what the psoas muscle was before all of this (thanks for enlightening me).

    you are so resourceful - strawberries and milk upon waking up from a GA are a fab idea- i wish i'd thought to request that when i woke from GA!

    don't know if you know but i'm 17 weeks pregnant, hope to see you around cambo again soon

    tanya xx

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