Carys Parkinson, diagnosed with neuroblastoma in Feb 2010 at 12 months old at Queen Mary Hospital Hong Kong. Moved to Melbourne to seek treatment at the Royal Children's Hospital. Confirmed to have stage 3 neuroblastoma, favourable histology, (non- N-MYC). At initial diagnosis, the tumour was non-resectable. 4 cycles of chemotherapy shrunk the tumour to 1/3 of its original size. Surgery to de-bulk the tumour was successful with 90% removed. Now on regular monitoring of remaining tumour.
Tuesday, September 14, 2010
All stable
We saw Lisa at the hospital today and had a good chat with her about the 2nd MRI results. She pulled up the images from the July scan and the one we had last week to show us what’s been happening inside Carys. In the past 2 months, it seems like not much has been going on at all!! So far, the remaining tumour looks quite stable, which is good news. The tumour is clearly visible on the images, running along the side of the spine, but there was hardly any difference in size and shape. Mum and Chris came along with us, so we were all very relieved when we saw that there was no change. Lisa seemed quite happy with the results too. In addition to the scans, the urine tests also showed stable levels of HVA – one of the hormones secreted by the tumour. Although the level is slightly above normal, it’s not increasing, which is good. Lisa believes that the tumour has had its big growth spurt, and now will remain stable. Though of course there are no guarantees. We continue with the waiting game, but at least we can breathe a little easier knowing that it’s not growing. Carys will be on 3-monthly MRI scans for at least the next year to keep an eye on things. If all stays stable, the MRI frequency will gradually decrease.
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I love the photo of Tane & Carys. It's all sounding really positive Don, great to hear all is going well. Lots of Love,
ReplyDeleteAnitax
Hi Donna, Thank you for sending me the link to this blog. Stable is good, not as good as remission would be! Rafael has been stable for 18 months now :-)) xxx Tash
ReplyDeleteHey Donna, Carys has grown so much since I last saw her. How I'd love her to hold hands and walk with Shayne. So cute the little hands...
ReplyDeleteI'm glad too that Carys is stable. I hope for a miracle where her tumour just disappears on her own. You are a brave soldier. I learn from Nicole (whose daugher Maddie was born in August and is still in the hospital) how frustrating it can be to deal with hospital procedures, but she wishes she had given birth in Australia, and not in HK. Cary's doctors seem great and very capable at what they do. Keep it up!
Lots of love, Jingyu
Hi Donna!
ReplyDeleteI need to contact you ASAp about a nice surprise on this Friday. I havent got any of your new details so please get in touch as soon as you can. My mobile and email is still tthe same.
We have been laughing and crying with you all and so beautiful to see Carys and Tane in the photo. Thanks for posting.
Thinking of you all and much love,
Jodie Phillip, Lucy and Daisy xxx
Hi Donna,
ReplyDeleteI finally made a google account so I can follow properly! Good to hear the tumour seems stable, Kathy and I are praying that it stays that way! You guys are really doing an amazing job already, keep it up! And wow, we really love the photo. Carys and Tane are so cute!
Love Kathy & Dave.
hi Donna
ReplyDeleteyour kids are so beautiful - i love the photo you've posted up of them holding hands.
thanks for sharing carys' journey with us, bet you didn't even know what the psoas muscle was before all of this (thanks for enlightening me).
you are so resourceful - strawberries and milk upon waking up from a GA are a fab idea- i wish i'd thought to request that when i woke from GA!
don't know if you know but i'm 17 weeks pregnant, hope to see you around cambo again soon
tanya xx