Carys Parkinson, diagnosed with neuroblastoma in Feb 2010 at 12 months old at Queen Mary Hospital Hong Kong. Moved to Melbourne to seek treatment at the Royal Children's Hospital. Confirmed to have stage 3 neuroblastoma, favourable histology, (non- N-MYC). At initial diagnosis, the tumour was non-resectable. 4 cycles of chemotherapy shrunk the tumour to 1/3 of its original size. Surgery to de-bulk the tumour was successful with 90% removed. Now on regular monitoring of remaining tumour.
Monday, September 6, 2010
2nd MRI
You know you’ve been going to the hospital too often when a nurse thinks you work there! Carys had her 2nd MRI today, and the nurse who checked us in looked at me and said, “oh I’ve seen you around before. Do you work here?” It was funny, but a bit sad at the same time. The process today was really smooth. No waiting around and all done in a couple of hours. We didn’t give Carys a pre-med this time, to see how she’d handle the initial steps into the GA. But we’ve noted that she definitely should have one next time. As soon as I carried her into the treatment room and she saw the 3 guys in scrubs and the bench to lie down on, she really screamed and clung to me. It was heartbreaking to pry her little fingers off my jumper while she was crying out “mummmeeeee!!!” and help hold her down whilst the anesthetist put the mask over her face. So next time, I need to ask the nurse as we check in that we need a pre-med to keep her calm. I might need some too! Coming out of the GA was ok this time. We were ready with warm milk and strawberries, so it was a little easier. We will see Lisa next Tuesday to compare the 2 MRI images and see how the tumour is behaving.
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